One of my favorite praise songs is Praise You in This Storm.
Life is full of both quiet and calm days and it is also full of storms.
Yesterday was an overwhelming whirlwind of storms for me as a mommy. As I
recover looking back I go to Matthew 8: 23-27 where Jesus calms the storm. I
want to share with you about my day yesterday.
I am thankful for a job that lets me attend some of Michael’s
therapy appointments at school. Yesterday I attended Michael’s speech therapy
and it was such a blessing to be in the other room and watch Michael’s
excitement as his therapist entered the room. He was so excited and even
attempted her name. I also watched through the window as his teachers kept
redirecting him to use his right hand to eat. It has only been out of the cast two
weeks. Teaching him to use it more is much easier said than done. While it was
a blessing to watch it also tugged at my heart that he had so much trouble using
that hand and I watched the other kids just eating away. If you are a mom, dad
or parent figure in any child’s life you know that feeling of wanting to take
away all the adversity in that little person’s life. That was my day all day
yesterday.
As Michael entered the room for his therapy session he was
surprised to see his mommy, but it was clear that he knew this time was devoted
to his beloved therapist. He engaged in many activities with her and it was
great to see him attempting so many words. She was very happy with his
improvement and said she sees improvement each week. She then transitioned to a conversation
surrounding her thoughts about Michael’s speech issues. She indicated that she
didn’t think it was a normal speech delay, rather apraxia of speech. This wasn’t
the first time I heard this, as our occupational therapist had mentioned it
before he started speech therapy. Our OT also suggested we seek this particular
therapist and I am so thankful she did. Whew…another thing on my list of things
to learn about. She explained a little bit about it and talked about having to
build up to the actual words instead of trying to use the actual word he can’t
say. She reiterated that it isn’t baby talk even though sometimes it sounds
like it. She even made and laminated some pages to use at home with interactive
Velcro pictures to help Michael focus. It will be a long road to speech
development. We need to get an iPad, but who can afford one when your paycheck
goes to pay for 4 or 5 speech therapies a month, at least 2 OT sessions, and 2
developmental therapy sessions and other appointments with orthopedics. Among
the whirling winds in this storm, the calm is that beautiful soul spending 45
minutes with my little boy every week. The calm in my storm is that she is
always a phone call, text or email away. The calm in my storm is that she sends
us home with things to work on and takes time to move us in the right
direction. The calm in Michael’s storm is teachers who are PATIENT and a speech
therapist that has instilled a love of learning how to imitate speech sounds.
Thank you God for the calm in this very active and sometimes destructive storm.
Note to self…do not attend two therapy sessions in one
day!!! J I
picked Michael up at 4 and headed to Duke for his occupational therapy. This
sweet angel we call his OT has been with us since he was 5 months old and she
is a wealth of information. She diagnosed Michael with sensory processing
disorder earlier in the month and it has connected a lot of dots for previous
behaviors, but it is still such a difficult path we are on. Michael’s sensory
processing difficulties aren’t in just one area. They span across several and
none of them are textbook cases it seems. This is the age when some of the
underlying behaviors really surface because the child is developing their own
sense of things and issues seem to manifest easier. What some people refer to
as a child having a tantrum for a SPD child is actually a child completely
overwhelmed and not able to process the things going on around them. They enter
fight or flight stage and sometimes they just can’t do anything but fuss. This
is Michael at this time and the episodes are becoming more frequent. He has
stopped staying in the nursery at church for some reason. Even if his favorite ‘big
sister’ is in there he is still overwhelmed by all the commotion. So, in church
we sit each Sunday with puzzles and hope for the best. At this stage it is have
him in the service making some noise or stay at home. I choose to take him and
offer myself to God and thank him for the blessings and ask him for strength
for the week ahead. We have two children to love, one who often times gets the
bad end of the deal, and a marriage to nurture. SPD and apraxia don’t go well
together. Often times the fact that Michael can’t communicate leads to an
episode because he gets so upset that we can’t understand him. She helps us
know when it is time to start massaging his incisions to help reduce and break
up any scar tissue. She tells me how long to wear his brace. She fits and makes
splints out of a flat piece of moldable plastic. Sometimes I refer to her as
our miracle worker. As we sat at the therapy table and he tried so hard to pick
things up with his right index finger and thumb it was so hard to watch him
struggle so much. Again, that feeling in the pit of my stomach and the reality
that I can’t change it. All I can do is help him the best I can. The storm
rages inside me…in my mind, in my heart, in my stomach. That moment that tears
are forming and you are fighting them. The calm in this storm is that beautiful
soul holding Michael’s left hand so he has to use his right hand. It is that
person we call our OT who accepts nothing but the best from Michael. She won’t
let him have an inch and God in this storm I praise you for sending her to us.
We know she is a gift from you. Without her we wouldn’t have the progress we
have and we wouldn’t have ever known about our speech therapist.
After we leave therapy I check in with our state case worker
for the infant toddler program. She has been a calm in this storm since Michael
was a few months old. She has held our hand, gave hugs, listened to our
concerns, helped write goals that will challenge him, helped us get the therapy
Michael needs and she even visited the little man at the hospital when he had
his last surgery and brought him a book. Currently she is trying to help us get
his OT at Lenox Baker into the state program. Each therapy session is almost
$600 for 45 minutes and he needs weekly sessions. With a $1200 OT bill each
month there is no way we can swing $2400 must less $3000 for months with 5
weeks! She doesn’t have to spend all this time helping us, but she does. She
could just do the minimum that she is required to do…but she doesn’t. She is
the calm in our storm. Thank you God for this special person who is doing the
work she heard you call her to do.
As we ride home and Michael screams the whole way home
because he saw the playground at Chick Fil A because I didn’t communicate
beforehand that we weren’t going to play…I pick up the phone and call my sister
and give her the latest update on speech that I had given my mom earlier in the
day. She listens and asks questions. Meanwhile Michael is screaming in the
background. She doesn’t say, “do something for him”. She understands that at
this point I can’t do anything else. You see, without our family and close
friends this storm might just take over us…especially me. I’m weak. I’m weary.
Knowing I can call my family and close friends and have support and not
judgment is probably one of the things that calms the storm the most. Thank you
God for family and friends who know the battles we are up against. Thank you
God for the friends and family who try to educate themselves.
So, for the first morning in months Michael didn’t scream
when we went to the car instead of the van. For the first morning in a while he
didn’t cry when I left him at school. Thanks to our OT I prepped him
continuously before we left the house that we were riding the car. The whole
way to school I told him he was going to school and that I was picking him up. Is
it a coincidence? Maybe. Maybe, just maybe, I did something right this morning…something
that works for Michael. We can only hope. Matthew 8: 23-27 reminds us that we
should not be afraid. It reminds us that Jesus is the calm in the storm of our
life. I write this blog not to tell you that I’m a perfect Christian or I have
it all right. I write this to tell you I am an imperfect Christian who often
times doesn’t get it right. I write this to tell you that I live in fear and I
am mentally and emotionally exhausted. I write this blog to tell you that with
all of this there is one thing I know. Jesus is my Savior and he is the answer.
I want to share the prayer written in my NIV Worship Bible by Marantha for this
passage.
Lord, if You are able to calm the storm at sea, surely You
can calm the storms in my life. I find myself day by day in the middle of the
swirling, raging storms of this world—the snarled traffic, the incessant noise,
the political unrest, the wars, the fear and the violence. But Lord, I confess
that there are other storms—storms inside of me, storms of my own making. I
worry and allow myself to succumb to stress instead of trusting You. I get
caught up in little spats and feuds with loved ones when You’ve called me to be
a peacemaker. I now see so clearly what little faith I really have. Forgive me,
Lord. Come and speak to the storms within and without. Come and be my peace
(Isaiah 26: 3, 12)
Lord I lift my hands to praise you…through my tears that you hold in your hand…through the fear…you
hear my cry…thank you for the reminder that my help comes from You. You might not calm the storm, but through the rain you are there...My strength is almost gone but I can carry on because you carry me...As we face
this day let us seek you as the calm in our storm...Thank you God for your mercy...Blessed be the name of the Lord...and ALL God’s people said AMEN!